Prettier and smarter than you. And your mom.

31 January, 2012

Pediatric Surgery is Bullshit.

Every doctor on the surgical team (there are three) has gray hair, so that's good.  It's not so gray that any of their hands are bent or wrinkled, but it's enough that each of them has specialized in pediatric ophthalmology or pediatric craniofacial orthopedics for at least as many years as I've been alive.  I doubt I could allow anyone to operate on my baby's beautiful eyes if he didn't have at least salt and pepper hair.

We are fortunate to live where we do so we have access to some of the top specialists in the world.  They've all done this thousands of times.  It'll be just another Wednesday for them.  The first children they operated on surely have children of their own by now, and so while they say my son's is one of the most severe cases of strabismus caused by craniosystinosis they've seen in their careers, they're confident that everything will go smoothly.

But though they've done this countless times, I never have.  And while they've operated on endless pairs of eyes, they've never operated on these, the most important eyes in the world.  I made those eyes from scratch, you know.

We've cycled through many doctors, tried many treatments, crossed our fingers and hoped and prayed, but there is not, unfortunately, a nonsurgical cure for his condition.  In fact, the surgery itself is noncurative.  He will be better; he will not be cured.  He'll need more surgeries.  It's likely that eventually we'll end up back with the entire craniofacial team discussing the merits of facial reconstruction.

But for now they will repair six muscles controlling his eye movement; three for each eye.  They will fix the fourth optic nerve that prevents his eyes from tracking together.  They say his condition will improve by as much as 80%, which would be phenomenal. 

The doctors explained all of this to me just as if they were telling me what they planned to eat for dinner.  Just like it's routine, just like five year olds having major surgery is in any way acceptable.  Just like I wouldn't crawl naked through broken glass and set myself on fire if it meant he didn't have to do this.  Just like I wouldn't trade everything I own to be able to take his place.

It's not routine.  It's not normal.  It's necessary, but it's not okay.  I made those eyes from scratch.

17 People Love My Gucci:

Dazee Dreamer said...

you both are in my thoughts and prayers

angel shrout said...

Sending you lots of love and hugs and of course praters to you both. HE will be fine, I just know it.. even though you are not sure your heart will beat again once it all starts. Deep breaths knowing we are all here praying for you both and sending healing love and thoughts.

middle child said...

Often times surgeons are aloof and have the "god" complex. The doctors who are not surgeons are generally much more pleasant and understanding. I actually had a surgeon that was both. He was a surgeon that totally knew his shit but also very aware of my feelings. Be glad that the surgeons know what they are doing and if need be, tell them how you feel. Pray all goes well. Peace.

nitebyrd said...

Sending you good thoughts and (((hugs)))

I've worked for doctors for over 20 years. One of the craziest was a pediatric urologist. As with most doctors, his demeanor with patients/parents was brusque, to say the least. His bedside manner sucked but his surgical ability was brilliant. All in all, I'll bet you'll take the surgeons skill over his personality, any day.

There appears to be a secret class in medical school that all future M.D.'s must pass with flying colors - Advanced Asshole.

Karl said...

Good morning Gucci Mama,

All the best to you and your son.

Your football post was spot on.

@ Nitebyrd: "Advanced Asshole" Heh, isn't that the truth.

Babes Mami said...

I hate it when doctors act like everything is fine, normal and dandy. They need to work on the bedside manner!

Kim said...

I'm so sorry that both of you have to go through this. It truly sucks. Will send lots of postive thoughts and prayers your way.

Linda Medrano said...

Honey, I know your darling baby will be fine. I'm sorry you both are going through this. I do understand.

Big Fat Gini said...

It is never easy to put our babies in the hands of another person. No matter how educated and skilled they may be.

Thinking of all of you and sending prayers for a successful surgery, calm nerves and much improvement for your sweet and gorgeous boy.

busana muslim said...

Thanks lot for this useful article, nice post

chiropractor melbourne said...

The surgery will be over before you know it. What matters is the after care after the operation.

Generic Viagra said...

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nurofen said...

I know how much pain you are facing right now. I will surely include the both of you in my prayer. I hope that he will recover faster.

dental clinic florence south carolina said...

It's hard to accept in a difficult situation like that. Though surgeons generally have to put up that face to keep you calm.

Erica White said...

It's sad to hear that. I hope you'll get well soon with that disease. There are still other doctors that can cure you, just keep looking. Good luck!

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Adele Simpson said...
This comment has been removed by the author.
Adele Simpson said...

It is indeed not easy to put the life of our baby to the hands of other people like doctors. They may have the right knowledge and skills, but still we can't take off the worries and other things inside our mind when it comes to our loved ones. I hope that your baby is doing well now.

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